Fuzzy lifts his head!

The internet doesn’t seem to work today in the hospital but I really want to share this so I’m trying to blog from my phone. Hope this works!

Foster is now 4 and a half months old. He lost many abilities at around 2 and a half to 3 months of age. Including smiling, crying and lifting his head.  Our doctors said that the loss of these abilities that he had previously shown, along with his struggles with secretions, breathing and protecting his airway, were all part of the progression of his neurological disease. Although nobody knows what that disease is as all his tests continue to come back perfectly normal.

Anyway, I know a lot of you have been following Foster’s progression very closely so I really wanted to share this video of Foster lifting his head this morning! He hasn’t been able to do this in well over a month now! Also want to say that Foster hasn’t had a seizure in almost 30 hours. Which is crazy, in the last few days he’s typically had around 8 or 9 seizures already by 9:00am. Typically they start around 4:00 or 5:00am and by 9:00am he’s had about 8.

Hopefully one day we can see Fuzzy’s cute smile again 🙂




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