We’re the McGillivray’s. Myself and Brett were both raised in southern Ontario but a job offer for Brett, right out of school, had us packing our bags and moving across the country. We soon were married and starting our little family. This blog began back in 2011, as a way to keep our family and friends back home, updated on our daily adventures with our first little man. Today we have three little men Clayton, Foster and Fletcher.
Our life changed dramatically overnight with the extremely rare diagnosis of our second son Foster’s SCN8A encephalopathy. Spending nearly six months in hospital with the onset of his disease, our little family blog became somewhat of a journal. And a critical tool in keeping our worried loved ones in the loop. Now, we continue to journey our life of unknowns. Making the most of our moments and trying our hardest to balance family life and hospital life. This isn’t a life of glamour or travel, just us doing our best to offer our unique family the most normal, loving experience we can.
Read more about SCN8A on the SCN8A Encephalopathy page.